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Our new routine...
What's life like as a Melanoma patient? At the moment, it's pretty darn boring! We started a new family routine today that will carry us through my first month of interferon treatment and perhaps for awhile afterward. I'm hoping to be able take over most of the kid duty after that first intense month of treatment. At the moment the kids are going to school full days on Mondays, Tuesdays and Thursdays. Danny drops them off at 9 and my Mom is picking them up at 4. Mom takes them back to her house and then Danny picks them up on his way home from work around 5:30. I predict they will be exhausted and I am going to learn new appreciation for those evening hours with them. (Or, they'll be grumpy and I'll just want to put them to bed like normal!) :) On Wednesdays through my first month of treatment, my Mom will have the kids for the day and is going to help me with some laundry and housework. My Dad is changing his work schedule so he can watch the kids on Fridays. Once I start treatment, Danny will drop me off at the cancer center (very close to work for him) in the mornings and then drive me home at lunchtime.
It's been a semi-rough day emotionally. Being a stay at home mom is SO important to me and although this is for a limited time, it's tearing out my heart to not be able to take care of the kids. Cancer has taken away a little of my identity as a mom and it's just another reason cancer sucks. My kids couldn't be in better hands. I just talked to Mom and Joey did well today, but Abby is struggling. She's been showing more anger lately. We're trying to stay consistent with discipline and grace. Both kids ask about my drain and back. Abby is a little more interested in the drain and is already asking when I can "take it off." We watched the Arthur episode about cancer with the kids last night. We haven't explained that Mom has cancer. They've probably heard me talk about it on the phone. We'll probably talk about it more specifically this week as we adjust to our new routine. Please pray for all of us as we adjust!
Wonderfully normal
I got the kids ready and delivered them to and from school today. It was wonderfully normal! Abby hid from me when I went to pick her up. She did NOT want to come home! This made me feel better about her going all day next week (T/TH). Joey will do great, but my baby I worried about. It will be especially nice that Joey and Abby will be together for lunch and the afternoon class. We are SO blessed with incredible teachers at their school. When I first got my diagnosis, I asked God why this couldn't have waited until the kids were both in school all day so their daily schedules wouldn't be so interrupted by my being sick. But, it's become abundantly clear that the flexibility of Light the Way and most importantly, the love their teachers have for them and our whole family is going to be such a blessing to us as we walk this road. There is NOWHERE I'd rather my kid be than with their sweet teachers if they can't be with me.
The kids are napping and I am spending naptime previewing an Aurthur I recorded to possibly show the kids. All this week, PBS is playing a special episode about cancer. Lance Armstrong "guest stars" in cartoon form in this episode. We haven't told the kids that I have cancer. Just that I had a mole that could make me sick that the doctor cut off. We still have some decisions to make about what we are going to tell them. I'd appreciate prayer for wisdom in that and peace for our sweet kids. Abby's first words to me this morning when I woke her up and carried her to the living room were "Mommy, does your back feel better now?" So, they are definitely aware of how I'm doing.
Tomorrow is my lymph node dissection. It will be sometime in the afternoon. The kids are staying with my parents for a couple nights. I'm off to rest and call for my report time tomorrow!
